Tag Archives: disabled

I actually drafted the title of this post a good few weeks ago, just after I had to juggle the need to be in two places at once for two different children of mine. But actually even more has happened since then. Since having two children in primary school and one in nursery, I have been really struggling to organise …

It’s been nearly a whole year since I last updated or spoke properly about P1’s special needs. It has been such an exhausting year but I think that we are heading in the right direction finally. I learn new things about P1 each day yet it’s hard to actually pin point the differences when people ask us. How do you …

Dear Diary, We went to a softplay party. P1 was invited and we are making more of an effort to get to all of the parties she’s invited to. Even rescheduling sleepovers with their grandparents so that P1 is able to attend. This particular party my MiL was able to take the girls and I there which I am eternally …

Dear Diary, I have grown to know that our eldest needs previous planning for whatever she does. Whether that be something very small like her next meal, or something big like a trip out. We are in the very first few days of the summer holidays and I’ve mentally prepared myself for mayhem in the first week or so as …

I can’t believe that it’s the end of P1s journey as a Key Stage 1 student. She attends a Primary School but when I was her age this would have been her last year in the Infants. In just over six weeks time she’ll be entering the Juniors phase and things are going to get tougher. I always find it amusing …

To my Princess 1, I’ve been really disappointed with your behaviour lately. To the point we’ve been to see the doctors because I know this just isn’t normal behaviour for a 6 year old. We have a few next steps and I hope that you are just in a very awful stage at the moment. You’ve been so doting on …

I’m taking part in the April Ultimate Blogging Challenge and today’s prompt was to write about who I admire and why. I had planned to write about my Grandad because my admiration for him is fantastic. But I’ve decided to write about my eldest daughter. I’m still debating whether or not that’s a bit strange. P1 is just over 6 …

Children are amazing little creatures. The strength they have and the determination is incredible. I saw all of this inside my tiny 5 year old daughter when she went through her growth hormone test yesterday. We arrived at the hospital at 8:45am. My Grandad came to support whilst hubby had P2 for the day. P1 hadn’t asked for food or …

I have a huge amount of proudness for P1 right now. For day, weeks and months I’ve doubted her. As you all know, if you are a regular reader anyway, P1 has hypermobility. For those that don’t know, it’s basically where the ligaments are very flexible which causes her to fall a lot. Anyway, she surprised us all yesterday. Normally, …

We finally had an appointment to see a professional of some sort regarding P1s hypermobility. It’s taken take nearly 5 months but today we saw a paediatrician and she was fantastic!! The Dr asked a lot of questions. I pretty much had to tell P1s life story. I went through everything that happened at the beginning of her life to …

Today was the day for the appointment with the Special Educational Needs coordinator at P1s school. I’ve been feeling very nervous about it for some strange reason. Miss M was lovely. So welcoming and friendly. She talked through what she’d noticed in P1; currently at top level for communication and language which is above average for the United Kingdom, she …

Joint Hypermobility – Joint hypermobility means some or all of a person’s joints have an unusually large range of movement. As a family we live with hypermobility every day. P1 lives with it every day and she cannot escape from it. It all officially began in 2010 when P1 took her first steps. She was an early, premature baby which …

We’ve spent the whole evening watching every bit of BBC Children In Need. Both my hubby and I shed quite a few tears. People think that kids are so flexible to everything. I could definitely see that in the stories that were told tonight. They are flexible, but they are not indestructible. Things do effect children in ways we could …